Tag Archives: american healthcare

Struck by Seratonin Syndrome

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I’m back, but out of work on Paid Family Medical Leave

Thank my state for being civilized with paid medical leave. An outlier in the US.

Since the second week of February, I’ve been experiencing new strange symptoms. Some went away, such as increased dry mouth, thirst, and excessive sweating while sleeping. Some symptoms did not. The concerning ones stayed.

My brief history of prescription medications

As a man long familiar with prescription medication, I am all too familiar with the risks from side effects. Prescription drugs and specialized support in preschool saved me from a seizure disorder I had as a toddler. I haven’t had a seizure since. Thankfully.

The only other time I needed medical attention was began seeing a psychiatrist for help and was prescribed Vivance, an amphetamine medication used to treat ADD. It caused me to have a heart attack in my early twenties. Worse yet, when my mother called him to tell him what happened, he coldly said: “What do you want me to do.”

After recovering with no damage to my heart and healthy results from tests on my heart, I tried again with a different psychiatrist. I discovered that I had severe chest pain or other similar heart attack-like symptoms with every other amphetamine-type medicine for ADD. In 2010, there were two nonamphetamines ADD medicine options (the exact same as the day, to my knowledge), Strattera and Guanfacine. The former didn’t help. While the latter did help, it wasn’t generic. It wasn’t covered by insurance (Typical because insurance companies play these games to make a profit over helping people. AND add insult to injury and tell you to try medications you’ve already tried before.)… Which meant it was $150 a month in 2010 dollars. I couldn’t afford it until two years later at Washington Apple Health.

After changing jobs and careers a couple times I learned first hand how screwed up insurance companies are with coverage regarding medicines. Whatever they say the cost of prescriptions is on your plan (with the exception of Washington Apple Health which is state Medicaid and covers stuff 100%) is a lie. Often they say they cover non generic, but try to fill it and they decide they don’t want to because it’s “too expensive” aka not profitable. (This is the case Even if you are paying for private insurance). Even if it’s the only medicine that works for you. The only place to get the actual price is to ask a pharmacist outside of your insurance what the out of pocket price is. No matter the insurance company or coverage, the bullshit was the same. It is confusing, deliberately made to be hard to understand your coverage, and if you have a serious accident, you go into debt. Lots of jobs tie insurance to it. Lose your job in most states and you lose coverage. If you are poor in America, you’re fucked.

Back to the future

2023. All these years later on my personal mental health journey for sanity and I’m still struggling with the same stuff as 13 years ago. That is to say, to find a medicine to treat depression that won’t kill me, or makes my life worse than before taking it. I’m glad to say that Guanfacine works to treat the ADD I have and became generic a couple of years ago, so it is affordable. My struggle with antidepressants continues.

What is Seratonin Syndrome?

“Serotonin is a chemical that the body produces naturally. It’s needed for the nerve cells and brain to function. But too much serotonin causes signs and symptoms that can range from mild (shivering and diarrhea) to severe (muscle rigidity, fever and seizures). Severe serotonin syndrome can cause death if not treated.”

https://www.mayoclinic.org/diseases-conditions/serotonin-syndrome/symptoms-causes/syc-20354758#:~:text=Serotonin%20is%20a%20chemical%20that,cause%20death%20if%20not%20treated.

Usually, when googling symptoms online, it’s common to get a worst-case scenario for whatever health-thing you are going through.

In this case, it was true.

I started having these symptoms two weeks after my doctor suggested that increasing the dose of my antidepressant could help with depression. Since I’ve been taking this medication for months without side effects, upping the dose didn’t seem to be a risk.

We were both wrong. While I eventually returned to work on February 22nd, and worked the next day, I had to take Friday off due to a migraine. And despite work helping me out with reasonable accommodations by adding a new policy, and buying me sound-reducing earplugs, and me buying brand new sound-dampening headphones, I had another migraine sick day last week.

So, while these symptoms are diagnosed as serotonin syndrome by my doctor, the noisy environment likely didn’t help. Being autistic and having long covid each make me sensory sensitive.

Therefore, starting today I will be off work under paid medical leave until the 27th to recover. And I didn’t know until today, that I have wait 15 to 20 days to receive this pay. Which is bullshit. The process is annoying when you’re healthy—figuring it out while sick is cruel. I wouldn’t be surprised if this was due to lobbying by the insurance industry. 15 to 20 days for an online application is unacceptable.

Well, I did it and now I have to wait to complete my application. The insurance company won’t (I asked the people at the doctors office). Can’t do anything else.

At least I am able to write again. I physically couldn’t due to headaches.

Even before this happened, I wondered if continuing was worth it. I loathe the SEO process, and having to advertise to get readers and feel that I’ve lost my purpose of blogging. I do not want to do SEO for a living or social media marketing. It feels like this is the only way to get noticed. Reading about how to articles or forums feels like I’m surrounded by snake oil salesman who only care about making money over the content. I lost the few friends I made doing this for different reasons, and its going on three years of blogging. I don’t want to blog for a living.

Does anyone still care about this blog?

Unique Opportunity: Epilogue

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It’s been a long time since I feel I did something trophy worthy.

I can’t remember the last time I felt so good.

I’m starting to feel fantastic positive feelings as a result of writing that essay. I achieved a goal I wanted. This victory shows that I am capable of so much more. This shows that all the inner work I’ve done has paid off.

https://theunknownreillyblog.wordpress.com/2022/08/02/a-unique-opportunity-part-2/

Part 1:

https://theunknownreillyblog.wordpress.com/2022/05/12/a-unique-opportunity/

This blog post is part 3 of a series of posts about this experience

I have an article in a newspaper! I told my story and hopefully will help change the world for the better. Holy shit. That’s a big deal!

This is evidence of how great a writer I could be. I had a lot of help from the Seattle Times journalist. This situation shows me that I can grow as a writer. I stood up and spoke out about problems in the mental health system. I’ll be helping someone else struggling. It feels good to help others by speaking up.

What a big deal! …

Someone told me "whenever your life is feeling stagnant or as if nothing is happening, that means you're being given the time & space to heal & release the baggage that you cannot carry to where you're meant to go soon..." I haven't looked at shit the same since.

Follow up details

I need to add details to the last post and the article. I didn’t mean to overlook these details. Ever have that feeling after a conversation where you remember something after the fact? That’s been me since Monday.

I did have successes in therapy. I feel I discounted how much of an impact therapy has had when it does work. I was able to work through so much with my therapist and everyone at Sound.

They had great groups and any support you needed. I can’t say enough how grateful I am to Sound Mental Health in this therapy journey. Life from April 2020 to June 2021 was good. That’s because I was in therapy. That’s because the zoom groups were so great. Those kept me going despite the lockdown social distance phase of the pandemic. I attempted to return for treatment there; however, they only take Medicaid. Disappointing that I couldn’t continue… But I get it. Those on Medicaid who need therapy need great providers the most. Just as I did during my time there.

Groups were helpful and supportive at Valley Cities while I was there. I really enjoyed the activities and the people. The employee turnover and changing therapists was too much for me. I wish I could have found that therapist match there. Oh well. I got some helpful skills out of this disappointment.

Back in 2009, I had a favorable year-long therapy treatment that helped. We worked through PTSD I was experiencing then. A year later, I recovered from PTSD through exposure therapy. It’s what I needed at the time.

Ah… I should have accepted the suggestion by the reporter to say something positive about therapy. I hope I didn’t mislead anyone about my experience. Therapy can help. It is maddening to get that help you need.

My problem has been how hard it was to get started, get comfortable, and progress in therapy. It’s been a long roller coaster ride I didn’t want. I was frustrated because now I know how it feels to be healed. What it feels like to have your work pay off. I have become better. I’ve become a better man. I never thought life could feel so fulfilling. I forgot how success feels to achieve something difficult with persistence and hard work. Therapy became my higher power. The dream is to heal all the trauma, fix the suffering as a side effect of mental illness, and break the line of generational trauma.

Faith is an act of trust in the unknown. Alan Watts
I’m not big on faith or spirituality, so posting thus is significant.

I’m choosing to take this as proof that I have grown as a person. I’m enough of an adult to take care of myself by finding a therapist. I know that I can follow through and win. I know there is more to dream about. I know that I want more from life.

I wouldn’t be here without therapy, psychology, the internet, and not giving up despite the heartbreak. All the therapists and social workers all the way. I didn’t give up at my lowest. I somehow held on. I wouldn’t be here without all the excellent support from my aunts and uncles on my mom’s side of the family. I wouldn’t be here if I didn’t have my cousins. I wouldn’t be here without blogging. I wouldn’t be here if I didn’t have my cats. I wouldn’t be here if I didn’t have my mom or brother. I wouldn’t be here with my friends. I am here because I had so much support along the way. The pandemic has shown how many good people I have in my life.

This is a victory for my values. A concept I learned with my previous therapist. This is a life-changing victory on all levels for me. I am more capable than I ever thought possible. I stood up for better mental health. I stood up for better healthcare. I stood up for civil rights. I stood up for personal accountability. I did it because it felt like the right thing to do.

I’m back in the arena, ready for the next mountain to climb.

I’ve become a published writer in a big publisher!

I’m the first family member to be published in the Northwest section of the Seattle Times! My mother, the poet, hasn’t done this. She’s been writing for 40-plus years. My cousins won state championships in high school basketball but they never did this. Nobody on either side of my family has achieved this.

I have made it, and the 15 minutes of fame are over. It was nice while it lasted. I’m grateful to have wrote that. I’m grateful for the experience.

Source

I’m back to square zero. I gotta figure out the next goal. What do I desire?

Unique Opportunity, Part 2.

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Feel the fear and do it anyway.

I’m back from my break! The heatwave last week sure drained me. The break was just what I needed, and I know what I need going forward. Without further ado, here is A Unique Opportunity, Part 2.

This is the Finale of this post from May:

https://theunknownreillyblog.wordpress.com/2022/05/12/a-unique-opportunity/

Songs of the post: All My Life, My Hero By the Foo Fighters.

A couple months ago in April, I wrote to my local newspaper for an article pitch.

The Seattle Times has a series of articles about mental health called The Mental Health project where they ask the local community about their experiences…

“The Mental Health Project is a Seattle Times initiative focused on covering mental and behavioral health. The project illuminates a growing mental health crisis in the Seattle region, Washington state and beyond. It explores the many types of mental illness people experience, spotlights promising treatments and research, and examines actions by government agencies, nonprofits and health providers to address the problem.

Evidence points to worrying signs of a mental health crisis in the Northwest, across the country and around the world, exacerbated by the COVID-19 pandemic, economic fallout and the nation’s racial reckoning. The rise in anxiety is straining schools, legal systems and social services, and disproportionately hitting vulnerable people, including people of color. In the Puget Sound region, Seattle Children’s has seen a concerning increase in visits for psychiatric emergencies, and schools are grappling with the effects of trauma and stress on students’ ability to learn. Adding to the challenge: a shortage of therapists and other options for treatment. 

The Mental Health Project explores these issues and more. The project is funded by Ballmer Group, a national organization focused on economic mobility for children and families. Seattle Times editors and reporters operate independently of our funders and maintain full editorial control over all coverage. 

Our team — editor Diana Samuels, reporters Hannah Furfaro and Esmy Jimenez, and engagement editor Michelle Baruchman — welcomes the community’s help in guiding and informing our coverage. Please email any thoughts, tips or story ideas to mentalhealth@seattletimes.com, share them on Twitter at @stmentalhealth, or leave a voicemail at 206-464-2090.

Seattle Times staff

https://www.seattletimes.com/seattle-news/mental-health/about-the-mental-health-project/

Back in April, on 4/20/22 (Omg, both the classic stoner holiday and Autism Awareness month! I find this funny because I am both Autistic and a Stoner. I never noticed until today… Haha), I wrote to their project email account, pitching an article idea. I had read an article in the Seattle times newspaper about feeling anxious about returning to the office. I decided to take a chance and write to them about my experience in the mental health system. An Autism-centered story proposal- The lack of formal diagnosis tools for adults. I honestly didn’t expect my story pitch to be accepted… let alone published.

That week was so stressful, A classic Murphy’s Law week where what could go wrong, did. I was home after getting awful side effects from the Moderna booster shot. I felt called to write this article because of my past experience and it felt like the right thing to do. I would regret it for the rest of my life if I didn’t take the chance to make it happen and possibly make the world a better place.

The Article after this awesome quote by Terrance McKenna, and drawn into a comic by Gavin Aung Than.

“Nature loves courage. You make the commitment and nature will respond to that commitment by removing impossible obstacles. Dream the impossible dream and the world will not grind you under, it will lift you up. This is the trick. This is what all these teachers and philosophers who really counted, who really touched the alchemical gold, this is what they understood. This is the shamanic dance in the waterfall. This is how magic is done. By hurling yourself into the abyss and discovering it's a feather bed.” Terence McKenna
From the awesome Zen Pencils. Source.

I was diagnosed with autism at 34. We need more research for adults.

https://www.seattletimes.com/seattle-news/mental-health/i-was-diagnosed-with-autism-at-34-we-need-more-research-for-adults-mental-health-perspectives/

I’m 36, and it wasn’t until two years ago that I was diagnosed with autism. I was lucky to even find out.

The years before involved multiple therapists that didn’t work, medication that gave me bad side effects, and misdiagnoses. Navigating insurance was a constant struggle.

The first psychiatrist I saw prescribed amphetamine medication for ADHD. That medication resulted in three heart attacks at age 22. Another psychiatrist prescribed two dozen different medications. Only one worked for ADHD, but my insurance didn’t cover it so I couldn’t afford it. I can only take it now because there is a generic form available.

It was hard for me to connect with therapists because I didn’t know how therapy worked, what kinds of treatment are available and that it’s based on developing comfortable, trusting relationships. 

I later sought help from the mental health organization Valley Cities. I went through several therapists there with no success. One left for another job, one finished her internship for college, and a couple just weren’t a good fit for my needs.

It was also around this time that I started to believe I may be on the autism spectrum. No other diagnosis was fitting completely; depression, anxiety and ADHD only partially explained the behaviors and symptoms I had in social situations. Information I found online showed me that I did have some traits and could be on the spectrum.

I asked my Valley Cities therapist at the time what I had to do to be tested. She said the only testing available was designed for children and teens, and I would have to go to Children’s hospital in Seattle or search online for a test. This is like asking a person with a broken leg to go buy new bandages and medical supplies on their own, without help.

I gave up in frustration and despair. Medication somewhat worked, but the side effects were awful. And although therapy groups were helpful, I needed an individual therapist I could trust. I had been spinning my wheels and not feeling or seeing improvement in my life. My faith in the system was shattered.

Meanwhile, I needed to work full time to pay bills, so I took a job as a cook, which meant I had to give up my Washington state Medicaid coverage. Suddenly, everything that had been covered through Apple Health, including therapy, medication, doctor visits and sleep studies, was in peril. The cheapest, lowest-coverage insurance was all I could afford on minimum-wage work. 

The early days of the pandemic, and the months leading up to it, were excruciating with few moments of joy.

My 18-year-old cat died, I lost my job, and the pandemic ended the board game night I attended at a friend’s house. I was smoking too much marijuana, and drinking too often. I was close to attempting suicide. I was toxic in a breakup with a friend who didn’t deserve it, which was the last straw. 

I asked my mother to bring me to the hospital. The therapist at Swedish referred me to Sound Mental Health. I’m grateful that I chose to try therapy one more time, despite years of mixed results, because finally, luck went my way. I was assigned a therapist after a consultation who could treat me. As we continued working together, I began trusting her and we clicked. 

On my third appointment, I asked about getting screened for autism. My therapist at Sound found a test for children and teens and asked me a series of questions, although some weren’t relevant for my age. I found out I am autistic the week of my 34th birthday in April, which also happens to be Autism Awareness Month.

Finding out was a relief because I now have something to work off of, and I know why I behave a certain way or struggle in social situations.

With a guide and stable professional support, I spent the pandemic working on myself full time. Therapy over Zoom worked for me. I met my Sound therapist in person at a park last summer for our final visit.

These days, I’m doing better. I’m in the process of self discovery and self awareness with autism. I am seeing a new therapist through Kaiser to work on the skills I began developing and practicing in 2021, and I smoke less weed and drink less alcohol than I did two years ago.

I do sometimes wonder if I’m having brief setbacks because I felt more comfortable during the lockdown than I do in the regular world.

But I’m also thinking about how long this process took.

It’s hard enough to find a therapist who accepts your insurance, accepts new clients, and has availability during the day that fits around work schedules. How am I supposed to grow as a person on the spectrum when autism in adults doesn’t have a formal guide of how it presents, and how to fit in?

There needs to be more research on autism in adults. It’s odd that I had to find out myself by looking online. Autism presents itself differently at every age group. By not having this knowledge for adults, we are causing unnecessary harm by misdiagnosing medical conditions. 

Reilly Anderson lives in Seattle and works in the cannabis industry.

Thank you for reading this post, and this article! If you enjoyed this, please subscribe and comment below!

Past posts:

Copyright Reilly Anderson 2022.

Beginnings, Middles, Ends…

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Beginnings

For my entire adult life until like April of this year, I was ashamed of my sparse dating experience. I felt my shame was evident to everyone else, despite my never telling anyone in person. I felt safe in the anonymous false comfort of Reddit and other message boards. Now, I think: Fuck it. It is what it is. I’ve come to terms with it. I can’t change the past, and I’m not starting from zero. I do have experience and knowledge about relationships and dating. The few times I have been in the dating pool, I’ve learned each time. In the past year, I’ve grown so much; it’s like I got a college degree in that stuff.

But ultimately, a degree is an ending and a starting point. The whole point of learning anything is to use that information in the world. Though I’ve changed for the better, I’m still afraid. Afraid of rejection. I’m worried I’m not enough. Last month, I paid for a month of Tinder and Bumble and did not have much luck. I’ve gotten a handful of matches, but only one conversation went somewhere with a natural person. Fucking catfish.

Which, was when I told her that I had met someone (the catfish before I figured it out) and wished her luck. I got a fantastic response back, which was heartwarming. I’m not sure I want to reconnect yet… My heart needs to rest.

I feel my dating profile might need improvement. Therefore, I have room to improve as a person and man. Thanks to stuff easing up, I can go out and do activities in person with vaccinated people. Online dating is ruthless with men because we outnumber women by a ratio of 2-3 to 1… So you need to stand out to get noticed. Finally, I can have fun and get pictures by living life for the sake of it.

I have a day left on Tinder premium and it feels like all the women are blending into the same person… Highly active who lives outdoors outside of work, drinks, doesn’t want a hookup while having multiple pictures with cleavage or lingerie , has a blank profile, lists their instagram, their dog is their baby (To be clear, I like dogs. but the obsession and pictures they choose with their dogs is unsettling.). The worst is when they match after I like them then never respond.

Technically I’m in the middle of my dating journey, and that’s enough. I assumed I would have this stuff figured out by now at 35…

Everyone starts somewhere. I’m in the process of figuring it out.

I guess that’s wisdom from age.

Middles

I feel I’ve entered a transition period in my life. As of last week, I’m fully vaccinated, have been at my job for a month, and thriving, and things are starting to open up again. While the CDC lifted the mask mandate for vaccinated people, I will continue to wear a mask until 80% of the US population is vaccinated. This year has taught me that you can’t trust people to do the right thing in America. The pandemic isn’t over, folks. Be safe for the children waiting to be vaccinated and those who are medically vulnerable. Please, Get the covid 19 vaccine, folks.

It feels strange emerging into the post-pandemic world as a privileged vaccinated person. I do want to see friends again, but still paranoid about getting covid-19 from other people. Even if we’re both vaccinated. While I’m treated for the virus, I haven’t recovered from the side effects of PTSD from the pandemic. I can thank my past recovery from PTSD for this. Without that, I’m not in the dark and can work through each stage of grief.

I’ve had trouble writing posts for the blog as I’ve adjusted to my job. Thankfully, it has a consistent schedule, I am good at the work, I know what to expect every day, and I like my coworkers, but it takes time to adjust to new routines. Sorry for the missed posts and random post times. Things should get back on track soon. It’s been a big adjustment from being unemployed and having time to write to working full-time again.

I’ve been thinking of trying something different with the blog. On the about me page, I said that I wanted to write fiction, publish a novel and a screenplay, and recipes. So far, posts have been heavy on my life, and I need to write about something different. Those things were put aside in 2020 because I needed to work through the difficult things in my life. In this new stable period of life, it feels like the right time to work on those again, which seems to be a theme in life right now.

Picture of plants in the sprouting stage of growth in dirt soil like a garden.

Endings

I had my final therapy appointment this week, meeting my therapist for the first time, for the last time, in person. All therapy appointments for the past year plus have been over zoom. On my desktop screen for a good part of the pandemic 2020, then on zoom through my cellphone screen. Fourteen months have been working together during the pandemic over the internet.

Mirror with gold edges on a dark pinkish wall. Fern Plant in a vase, mahogany stool.
Mirror, mirror on the wall, connect me to zoom. I have therapy in 5 minutes…
Photo by Max Vakhtbovych on Pexels.com

We met at a park after work. It was warm and sunny, and many people were on the lake side Green Lake path. It was the first time I’d walked along that park, and it was lovely. Most people were still wearing masks, and it felt like I was baring cleavage by not wearing a mask, despite being vaccinated. Having an outside therapy appointment was a little weird, but okay for a final meeting. It reviewed our time together, how far I’ve come, and where we are going. It was nice to hug her as we met and left to go our ways. I said “Thank You” one last time. I’ll forever be grateful to her. Thanks to her, I was able to trust therapists. I was able to experience for myself that therapy does work. I was not terrified that she would leave out of the blue. Unlike doctors or any other specialists, you can’t change them often. You need to trust that your therapist will be with you working on your issues for an extended period—usually, several months for each thing after you’ve built trust.

I slowly realize that our time working together is over. All this happened at a good time. It felt like a natural transition. We were in a spot where I was figuring out what to work on next in therapy.

I am in a great place in life because I chose to continue. And I gave therapy one more try… Despite being let down or heartbroken in my quest to get it. I’m not used to feeling proud of myself. I still feel weird expressing myself and who I am. I have things to work on and will work on for the rest of my life, as everyone does.

I may have been unemployed and looking for employment, but my actual job last year was as a person in therapy, showing up and doing the work. I didn’t waste the precious time I had last year.

It was a bittersweet end. Once again, I’m without a therapist. I’m so grateful that I had her help during this time. I hit rock bottom last year, and the pandemic worsened my recovery. I’m here today, better than I’ve been in years because of therapy. That said, I have quite a bit to work on myself.

This sucks because I feel isolated again. As an introvert, I am comfortable being by myself and doing things. But I do need a connection with others. I don’t feel like there is anyone I can talk to staff about emotionally. Because of the pandemic, it feels like all my friends are online. I’m limited in what I can share with my family. Not everyone is safe to share emotional or personal things with. Or it’s a spectrum, and maybe the things that bother them are things they don’t have the professional training to help with. I kind of trust myself and working on this. It takes me a long time to trust people. By default, I don’t trust people.

It comes to me that writing this is ironic because I’m being vulnerable as I write this.

I’m in insurance limbo again. While I’ll have health insurance with my job, I don’t know what the plan covers. I’ll likely have to pay for meds and appointments with the plan, because it’s a private plan. Worse than WA Applecare. Then I have to find a therapist who offers appointments after or before work, then, a therapist I click with. 🙄 Man I hate American healthcare.

Maybe not the final therapy appointment with my (previous 🙁) therapist, but this is an ending.

Betty

Betty the chicken died in the night on May 9th. She was 6 years old.

Highlights of Betty’s life.

I wrote on Facebook:

Looks like Betty the chicken doesn’t have much longer. I had to pick her up from the run outside the coop, and place her inside for the night. The younger chickens were perched inside ready to sleep. Poor old girl couldn’t make it. I think she knows, too, from the look in her eyes.

I said goodbye that night. I told her she was a good chicken and I liked living with her.

Betty would hang out with us outside whenever my mother or I sat outside on the deck. Or the chickens would follow me inside as I took out the trash and recycling. Chickens are excellent companions. Rest in peace, Betty.

Mom buried her in the dirt in the coop area. She asked if I wanted to be there, but I declined. I had my time with her the previous night.

Epilogue:

I’m looking forward to getting a haircut and makeover. My hair and beard are out of control 😅. It’ll feel good to get a professional cut.

I wonder if I over share with these posts… Or the right amount to find people to connect with?

My healing journey from now moves from the mental space to the physical space.

End of the month health insurance bullshit

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Picture of fire
Photo by Pixabay on Pexels.com

An American Healthcare rant:

My lifelong mortal enemy strikes again to make life difficult: So Sunday I sent in a prescription in for a refill because it ran out. Following my doctors plan, I was expecting to pick up a new dose for my antidepressant from 20 to 40 mg. I get a call from the office saying that the insurance company (Applecare) not only won’t cover ANY dose of that antidepressant, but “suggested” other drugs to take instead. Drugs I’ve tried before in the past which did nothing for me or gave shitty side effects. My current med doesn’t give bad side effects and is the only antidepressant drug that’s ever worked for me and changed my life for the better.

Long story short, I called the number on the back of my insurance card and it was resolved in 5 minutes. Which is the great coverage and service I’ve come to expect from Community Health Plan of WA. I’m incredibly lucky to qualify for this right now because I’m unemployed. I get full coverage. I am so grateful for this health plan. So, having this happen was a slap in the face.

At the end of the month, insurance companies try to deny patients any prescribed drug which would be expensive for them to cover to save money. Apparently this has been happening since before I was born. Insurance companies count on you not fighting them so they can save money for themselves at your health expense.

Even if prescribed by a patients doctor, and even if that patient has tried every other available RX for that condition. If I had to pay out of pocket, my medicine would be $250-300 A MONTH for 30 pills. Which is what I’ll have to pay when I get a job again since most health plans don’t cover shit for prescription drugs, like my last plan with Kaiser Permanente. Hopefully I will know by the end of the day if this is resolved. Fuck you insurance companies.

Due to current prescription drug laws, it will be another 18 months before this medication is generic. AKA Affordable. That is if Trumps pick for the Supreme Court doesn’t throw out The Affordable Care Act and brings back “pre-existing conditions” to deny coverage.

So, if you need to refill your prescriptions today, expect denial by your insurance company. Hopefully, it will be resolved with a phonecall and be covered again. That is if you have a reasonable health insurance company like I do. I wish anyone dealing with our nightmare American healthcare system luck. This alone is why nobody should move to America.

I hope that I don’t have to go long without my antidepressant. If I have to, I can cope until Thursday when it becomes October. I’m already feeling sad because my Dear Grandfather passed last week, and not having my regular dose of medication doesn’t help.

I dunno what is making me the most grumpy… The stressful world we live in, the uncertainty of finding work, not socializing with friends or family much, or the preexisting state of my DNA which led to my current health conditions I manage.

I’ve been on this unwilling ride to a healthy mental health for 12 years. That is far too long. Going in, I expected maybe 5 years at most. I’m so tired of having my life on hold because insurance won’t cover my medication or therapy visits. I am really trying to be positive and believe that this year is the turning point. This is not for a lack of trying every other way such as self improvement tips, exercise, meditation, healthy eating, and so on. Half my depression is physical brain chemistry. The only way to treat it is with medicine.

This is why voting is so important this year. Trump hasn’t done shit to change the fucked up Healthcare system. Not that he has done anything to help anyone but himself and his cronies. I like Joe Biden. I doubt he will change much in the system thanks to how fucked up Trump has destroyed America. It’s simply a huge amount of work to recover from and so many burning issues to address.

God dammit, I just want to live in peace with minimal suffering. To make my way and have anyone struggling with medical conditions to not have to pay the equivalent of car payments for medicine. This system feels like its setup for you to fail. Going through the slow process of finding the medications to treat you is difficult. I am so fortunate that my daily survival doesn’t depend on my medications. Insurance companies don’t care about you. All you are is another expense while they pay their CEOs millions of dollars.

Thank you for reading my rant. How has your experience been with prescription drugs and the American Healthcare system?

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© Reilly Anderson. 2020. All rights reserved.

The 12 year Therapy Odyssey

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The 12 year therapy odyssey:

I’ve struggled since 2008 to find the right therapist, medications, and treatment combination.  As soon as I recognized there was something wrong with me, in this case a mental health problem, I asked for help. Despite all my efforts, my Mother’s efforts, and doing the right thing by giving a combination of 10 different psychiatrists/therapists time and faith in the system, nothing worked. If I did make any progress, it was so small and subtle that I couldn’t tell if it was from therapy. This is incredibly frustrating compared to my experience with other medical treatments, such as physical therapy, which helped me after a car accident and a job injury. Both injuries weren’t that bad. When I went in, I knew a realistic schedule for treatment, could see and feel progress, and would have answers for problems. This wasn’t the case with therapy.

My first therapist nearly kills me by prescribing a medication that gives me three heart attacks at 23. To be fair, this is a risk for any amphetamine ADD medication. The disconnect was that he didn’t bother to visit me in the hospital, or seem to care when my Mother called and said what happened to me. The few visits we had weren’t helping, so I ended treatment immediately. I’m lucky that I was young and didn’t have any serious damage to my heart. It took me another year or so to try therapy again. 

In the 12 years when I started in 2008, only one therapist was somewhat effective for treating me. In 2009, I had PTSD as a result of a robbery-home invasion. I did exposure therapy with that therapist, which kinda worked. At home, I sped up treatment by binging true crime shows such as FBI files, Forensic Files, and various crime documentaries. Oh, and watching the news. I knew I had recovered after I stopped watching all of those. I feel that using the true crime shows as a treatment helped far more than therapy sessions. This wasn’t a suggestion by the therapist at the time. Fortunately I had Dr google to help. (You know searching stuff in a search engine to treat yourself because the actual world isn’t helping.)

In my experience with prescription medication, you might get told the top common side effects, then given paperwork with small text including a hundred other possible scenarios. At that point, you don’t care because you (have) to assume the medicine will help you with your problem. Despite all the testing and research each person’s body is different. If everything goes well and the side effects of medicine are helpful, great! If not, it takes months to years to try and get off of medications. It’s still possible to try dozens of medicines for multiple medical issues and not find the 1 right prescription for you. This is for one health problem. If you have multiple conditions, this becomes more complex as you and your provider have to balance the benefits and side effects.

The car windows are dirty. My finger is on the camera lens. The sun is causing a reflection in the windshield. The road is windy and its in a canyon. But I’m moving forward on the road. This is a photo I took on a road trip through Yakima Canyon heading back home. An apt metaphor for my journey with therapy.

Past experiences with health insurance and therapy:

In October 2019, I tried again to get help to find a therapist under my work’s Kaiser plan. Nothing was covered including medication (Which Kaiser lied about in the plan we got. Says 80% of medicine costs, but if you do a price comparison online, every medicine I got except one was the same price as prescriptions under zero coverage.) You also have had to find a therapist from a third party website (https://www.psychologytoday.com/us) by searching through profiles one by one like browsing the grocery aisle. After a while, all the therapists feel the same. I don’t get why finding a doctor or dentist is as easy as finding somewhere to eat, but finding a therapist is like online dating? 

You couldn’t search for therapists on Kaiser’s website. (According to the last time I had Kaiser, February 2020) You could only get a referral from a psych coordinator at one of their facilities. 

Source

When they did have therapists, there were only a handful of them all booked for months, not accepting new patients. That’s bullshit. This is way too hard for someone suffering from health problems. So, I got medications I could afford on the minimum wage. Except my anti depressant which was $220 for a month of medicine.  I couldn’t afford paying $150-200+ a month for therapy on a minimum wage job in Seattle. A major reason I chose this job, and accepting the $1600 a month wage was because Health Insurance was offered. I admit that I didn’t have much negotiating power before I got this job. My employment history isn’t that great. In large part because I’ve been in industries unsuitable for me, and my combined mental health over my adult life has been poor. Honestly, that Kaiser plan I had wasn’t much better from the health plan I had when I had a high demand, high paying job, as a local CDL truck driver a few years ago delivering soda. But that work drove me crazy. Maybe some are suited for that, but it’s another lifestyle career. Where you live to work as your life. That isn’t me. I work to live. I also wasn’t available much during business hours between working in the restaurant industry, which meant I was either sleeping during the day or working at night. Sigh.

Shopping around for plans isn’t an option when you are broke and don’t make much. All the plans are awful, and leave you saddled with debt. I actually have better insurance now, unemployed, with Washington AppleCare than any bullshit private plan over my entire life. My biggest obstacle after the quarantine is over is having to give this up again for a lesser plan. I know I’m lucky to have that, but this time period will be the only vacation I’ll likely have in years. Maybe in a few years after I figure out long term career goals I won’t be making minimum wage anymore, and might have better health insurance plan options. That feels like an eternity right now.

The good news is that I am making progress in therapy. I have to remember to give myself credit, and not be so hard on myself. You made mistakes. Life hasn’t gone as I’d liked, but that’s how it was. It doesn’t have to continue sucking.

I don’t want to do anymore blue collar work because I’ve done that a few times already. College is extremely expensive, and it’s not smart to go without a concrete plan. I need to know the degree and career path I want to achieve. I have some ideas of things I don’t want to do. Either way I have to pay the bills. I’m not going to make the mistake of choosing a path too fast, or because of fear again. It doesn’t help that I don’t like working. I don’t know how I’m going to tolerate dating now that I know it’s work too. Guess that’s just the way it is. Well, you have no idea bro. Don’t make assumptions before you’ve really got into it.

Post thoughts…

Thank you for reading my blog! I had a lot of trouble writing this post. I wrote a draft of something on Tuesday, but realized it wasn’t publishable. I lost Wednesday to a migraine, and Thursday recuperating from it. So, I salvaged this from scraps from other posts. (I keep a separate file when writing to put content that doesn’t fit with the current post. This is the first time I’ve found something useful from it!) I guess my writing style is to be completely consumed by one thing at a time. This is progress. It’s one step closer to finding my niche, my purpose in life.

All nature photos from the car taken by me.

Song of the week:

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© Reilly Anderson. 2020. All rights reserved.

Have a good week!

Reilly.